Sunday, March 27, 2011

Drug Study Trip #1

We arrived in Palo Alto this afternoon and are settled into our hotel.  The kids are sound asleep at 7:30pm after a hearty dinner at Max's Opera Cafe at the (really fun) Stanford Shopping Center.

The drive took 2.25 hours and was relatively easy; but only because I had Kevin's help.  We had to stop 2 times for bathroom and food breaks.  My friend Sydney gave us wonderful directions through Stockton, Pleasanton and over the Dumbarton Bridge (the kids loved that name--repeated it 20 times each).  The weather was cloudy all day, clearing just before sunset.  It is supposed to be sunny tomorrow and we are all ready for that! 

We are staying at the Marriott Courtyard Hotel in Los Altos.  We are about 10 minutes from the clinic.  We are to arrive there at  8:30 am tomorrow and I have no idea what the day will be like.  How long?  What will we do?  Who will we see?  Will the kids have bloodwork tomorrow?  Will they give us a better idea if Jenna has any chance at all, considering she is still a slight 42 lbs.?

After tomorrow's appointment we will head back home for a normal school week.  Grandma Juanita arrives to Sacramento on Saturday and will travel back here with us next Sunday for our second, and much longer, visit.  We will be here through Wednesday of next week.  At the end of that visit the "screening period" will be over and we will know for certain if Jenna and Patrick have been accepted into the study.

I am grateful that Kev is here with me for this first trip.  There are so many logistics to learn.  Once I have the lay of the land I will feel better about coming back.  We have two rooms that adjoin and the hotel has a sundry shop, laundry room, pool, hot tub and bar.  What more could one need...besides maybe a kitchenette?  We're going to be dining out an awful lot. 

Tucker the dog is having a sleepover at our (dear) neighbor's house.  Here's hoping he's a good boy.  Jenna had a really tough time leaving her dog.  I wish he could come on these visits with us; but the hotel won't have animals...

I will post tomorrow after our inital visit.

Love, Teresa

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