After a great weekend at the Natalie's Wish event in Orange County we flew to Palo Alto for our final week of the drug trial; and wouldn't you know our Jenna got the stomach flu. It hit her hard, quickly, and when we went in for the routine labs required for the drug trial, the doctor recommended a trip to the ER for the day. There she could receive fluids and the potassium so important to keep her on track. We were disappointed that after this whole day in the ER, her blood chemistry levels have declined further (even though the tough little bird looked quite good to me) in spite of the IV fluids. She is being moved from the ER at Stanford Children's to the Pediatric Unit, where she will spend the night with Kevin by her side. Patrick and I returned to the hotel in a cab and he is already asleep. The sight of the ER and the sight of his sister IN it had him pretty shaken. I myself am so tired and worried and weary of Cystinosis I'm kind of in the clouds...
Thanks for keeping our Jenna in your thoughts. She didn't shed a tear the whole day in the ER...just watched the IV being put in, watched a movie, took a nap and chatted with nurses as they tended to her. : )
Teresa
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